From Karen Meier, Steve and Tom's Mom
(and Upside of Downs director)
I'm in relatively new territory here as caregiver of ADULTS with special needs - my two youngest children are young men now, one is 18 and the other is 20; both have Down syndrome and are on the Autism Spectrum. The 20 year old also has significant vision impairment and a Mom-diagnosed eating disorder. Both are enrolled in a post-secondary program here in our new town in southern California (we moved here in spring of this year from the Chicago area, husband's job transfer brought us here). While still living in Illinois we applied for and were granted "guardianship" for both boys upon their respective 18th birthdays. We hired a lawyer specializing in setting up Special Needs Trusts and successfully completed the complicated process. Not only did she set up the trust, but she also wrote up the Will and Testament, power-of-attorney, etc. documents for my husband and me. It was one of those things that was "not too fun," but extremely necessary in order to prepare for and protect the future of our 2 young adults in our care. Because I'm pretty new at this phase of my boys' lives, I have more questions than answers and the answers to some of the questions I've had are super confusing. Let's meet up in the Facebook group, Upside of Downs Umbrella, and we can sort things out together as we journey along. Just click the Facebook icon to visit with the group!
Just Starting the Journey with Our Special Needs Adults
Founded in 1998 by parents, the Upside of Downs is a 501(c)(3) not-for-profit charitable organization serving thousands of special needs individuals and those who care for them. Federal Tax ID#38-3375526